After a long fun weekend, we packed up and headed to Birmingham for not so much fun. \u00a0Asher was scheduled to meet with the neurosurgeon at Children’s for the first time. \u00a0He was tired of being in the car, and I was nervous. \u00a0I had some idea of what we would hear, but I was surprised, too.<\/p>\n
Children’s is an awesome facility. \u00a0The lay out is set for kids to feel comfortable in their surroundings. \u00a0They even had clowns on hand for face painting. \u00a0While I filled out paperwork, Steve and Asher walked around to check it all out. \u00a0Ash even got balloons painted on his leg! \u00a0If it wasn’t for all the yucky doctors, it would be a fantastic place to visit.<\/p>\n
The neurosurgeon was a very nice man. \u00a0He took a look at the MRI, studied Asher’s head, and told us the news. \u00a0He saw nothing that concerned him with his MRI. \u00a0Yes, the cyst was a category 1 or 2 (which is small), and yes the water around the brain was there, but the amount was not enough for any concern. \u00a0Great news! \u00a0However, when I asked if these things would be causing him developmental issues, he said no. \u00a0It may be a genetic disorder. \u00a0“WHAT?” \u00a0Asher has a ridge on his forehead where his skull didn’t grow together correctly. \u00a0This plus the developmental issues point to genetic problems. He called a colleague to tell him what to order for the blood tests. \u00a0He also ordered an X-ray to study Asher’s skull to make sure there were no other problems.<\/p>\n
We waited for the genetic doctor to fax over a list of possible disorders. \u00a0When the fax finally arrived, there was one disorder. \u00a0One disorder with a 5 page synopsis of the disorder. \u00a0It is called GA-1. \u00a0It is a metabolic genetic disorder which prohibits the body from turning Gluteric Acid into energy. \u00a0Most of the symptoms Asher has could be explained by this. \u00a0However, we will not know the outcome of the blood tests for another month. \u00a0If the test comes back positive for this disorder, we will have to implement a lifestyle change that will follow him throughout his life. \u00a0It could be very dangerous.<\/p>\n
Basically, we don’t know anything. \u00a0I just want them to find out what is going on with my \u00a0precious fella and FIX IT!!!! \u00a0 I’ve spent a majority of my life putting doctors on a pedestal, but now I understand why they call medical doctors “Practitioners”. \u00a0They are just really smart people who are trying to figure it out. \u00a0 I’m not blaming the doctors. \u00a0They are doing the best they know how. \u00a0I’m just impatient. \u00a0I want to know what I can do to help my boy. \u00a0Right now, Steve and I are fumbling through all of the medical mumbo-jumbo in hopes to help find the needle in the haystack. \u00a0It has been a horrible journey. \u00a0This road continues before us.<\/p>\n
Some would be so bold to say, “Just trust the Lord”. \u00a0To this I respond, “Well…of course I do!”. \u00a0However, I am human. \u00a0In this state of being, I am a sinner. \u00a0Therefore, \u00a0I generally fail more than fly. \u00a0Trust in the Lord only comes from the Lord. \u00a0In and of myself, I tend to be more like Job than Jesus. \u00a0Just being honest here…please don’t crucify me.<\/p>\n
I want to thank everyone for their prayers. \u00a0Many of you have asked what is going on, and I am certainly willing to discuss it. \u00a0To be honest, though, it is easier to write it down. \u00a0Every time I talk about it, my frustration goes out the roof. \u00a0I love you all. \u00a0I just want my boy to be well. \u00a0My heart is trying very hard to \u00a0not shatter on a daily basis.<\/p>\n","protected":false},"excerpt":{"rendered":"
After a long fun weekend, we packed up and headed to Birmingham for not so much fun. \u00a0Asher was scheduled to meet with the neurosurgeon at Children’s for the first time. \u00a0He was tired of being in the car, and I was nervous. \u00a0I had some idea of what we would hear, but I was […]<\/p>\n","protected":false},"author":2,"featured_media":170,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[6,7,8,9,1],"tags":[],"class_list":["post-247","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-faith","category-family","category-health","category-motherhood","category-uncategorized"],"_links":{"self":[{"href":"https:\/\/www.autumncalvert.com\/home\/wp-json\/wp\/v2\/posts\/247","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.autumncalvert.com\/home\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.autumncalvert.com\/home\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.autumncalvert.com\/home\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.autumncalvert.com\/home\/wp-json\/wp\/v2\/comments?post=247"}],"version-history":[{"count":3,"href":"https:\/\/www.autumncalvert.com\/home\/wp-json\/wp\/v2\/posts\/247\/revisions"}],"predecessor-version":[{"id":250,"href":"https:\/\/www.autumncalvert.com\/home\/wp-json\/wp\/v2\/posts\/247\/revisions\/250"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.autumncalvert.com\/home\/wp-json\/wp\/v2\/media\/170"}],"wp:attachment":[{"href":"https:\/\/www.autumncalvert.com\/home\/wp-json\/wp\/v2\/media?parent=247"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.autumncalvert.com\/home\/wp-json\/wp\/v2\/categories?post=247"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.autumncalvert.com\/home\/wp-json\/wp\/v2\/tags?post=247"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}